Hi friends and family!
I have been sharing some of our story over on my personal blog rather than here. I just wrote a post this evening about our trip to see the Geneticist. I'd love if you stopped by to read it:
Aside from this, Peyton has been having a bit of a challenging week. She's not outright "sick", but she keeps having to wind up on oxygen during the day while she's awake, which is unusual for her. Also, she seems to have a fair amount of pain on a daily basis. Since she can't tell me, I don't know what that's all about. I feel like her hips and shoulders are really bothering her, so perhaps that it.
We see the cardiologist next week. She went a year ago. She has a heart murmur and a mitral valve prolapse. Praying that this is no worse now than it was last year. I will update after that appointment!
Thanks for stopping by!
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We welcome your comments and especially your prayers and support as our family journeys through the ups and downs of life with a special needs and medically fragile child. Thank you for visiting!