Thursday, October 18, 2012

No Transfusions!

I am happy to report today that Peyton did NOT require a blood transfusion!  The number that came back from the bloodwork this morning was the exact lowest number possible to have without requiring one.  So, it's close...but for now, we don't have to deal with this.

Peyton is pretty junky today but it doesn't seem to be settling in her lungs.  It's mostly upper airway.  She's a little cranky, so I'll take that.  She's still fairly sleepy though.  The puffiness in her face has pretty much gone away, so that's good.

I have been in touch with Peyton's geneticist in Boston.  Since he has taken great interest in her case, and since we have no idea what is going on with her these past 10 days, I contacted him to give him an update.  As it happens, he is at a conference on metabolic diseases, which is fortunate for us.  He emailed me the other night and he called me this morning.  I've now sent another email from him over to the team here so that they can see what his thoughts are.  He would also like for one of her doctors to contact him, so we'll see what comes of this.

Not much else is going on, so I guess that's a good thing!  I will, of course, be keeping you updated as things progress.

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