I am so tired right now. It has been a very long day and it's only just after 7pm.
I'm going to make a very long story short. I'll fill in with more details later when I am not so tired. Peyton is still in the hospital tonight. In fact, she was moved from the regular unit to the PICU step down unit this afternoon. She was just not doing very well this morning. In fact, we just aren't sure what is going on.
A lot of labs were still pending, but what was coming back was negative or the numbers weren't too bad. Her CO2 level was actually higher than it should have been, but not dangerously high. She was sent for a CT scan, a skeletal survey, and a shunt series. The doctor from the gen peds team consulted with the PICU doctor and they agreed we should get Peyton on bipap to help with her respirations and because of that CO2 level. She is on bipap now, but she's a bit restless. Not fighting it, but she's not completely still.
As we don't know what is going on, we don't know when she'll get home. At this point, I think it would be pretty optimistic to assume we'll be home for Easter. This visit has been yet another bit of proof that things can turn for her on a dime.
Hopefully we'll know more in the morning. We appreciate your prayers.