So Peyton was admitted on the 4th and got to go home on the 5th. She went home on an antibiotic and seemed to improve a little after a few days. However, last Tuesday she started getting sick again. She could have gone to the ER but we were able to get right in to the pulmonary clinic. We spent several hours there, but eventually were sent home and Peyton began a 2 week course of IV antibiotics. This is possible to do at home since she has a port.
She has been improving a bit more on the new IV antibiotics. If you follow me on facebook, you will know the absolutely ridiculous schedule I am having to follow for these meds. I'll go into that another time. Anyway, last night (Sunday), I couldn't get the line to flush properly when I went to hook up her meds. Long story short, I eventually began her meds and about 10-15 minutes later noticed a large wet spot on her shirt. Not good. Not good at all. I took her shirt off and the port had infiltrated, meaning that the needle probably dislodged somehow and the fluids were going directly under the skin and not through the port into the vein. The skin all around her left chest/armpit area were totally puffy and very irritated looking. This meant a DEFINITE trip to the ER. I'm actually typing this in the ER at 12:37am Monday.
Surgery came and had a look. She will have a port study done Monday (today) - they will access it and inject a dye to see how it flows. The xray done earlier showed the port to not be quite in the right position, so there is a chance there's a problem requiring surgical intervention. Hopefully not.
No port access means no meds. They had to start a regular IV. Fortunately they were able to start one on the first try. She has horrible veins, so this is a miracle.
Please pray for all to go well with the port study and that no surgery will be needed.
Will keep you posted. If you follow me on facebook, you'll get more frequent updates as things progress. www.facebook.com/sarahfontenot