Wednesday, February 6, 2008

Genetics: Still No Diagnosis

Peyton is doing much better today and is back at her babysitter's. Those extra fluids seem to have done the trick.
After waiting since 10/01/07 for results from the research study Peyton's geneticist put her in, we finally have word back. The word is that there is no word. NOTHING came back. So, in what is apparently the most extensive genetics testing currently known to mankind, nothing showed up. That said, her doctors are all still convinced it has to be genetic because of number of issues and types of issues she has. I guess those things just don't happen randomly altogether usually without it being something. So, ever-frustrated, we press on with no diagnosis and no prognosis. I know whatever it is is going to be exceptionally rare so we may never have a prognosis but I want a name! I'm tired of not knowing. I'll go to the ends of the earth to figure it out if I have to...I just need to know where to go.

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