Peyton had a sedated hearing test (ABR) yesterday at Texas Childrens Hospital. She has these every three months or so. The end result is that her hearing has stayed about that same since her last test in December. In December, the audiologist noted that her right ear was a little worse than the test prior to that. This time, she noted that for some reason the nerve doesn't seem to be functioning as well as it was in December. She was at a loss as to what that was all about since her hearing was basically the same.
Later on today, I will be taking Peyton back to Texas Childrens where we will have her 6-month check up with her Geneticist. Yes, I know...she's 10 1/2 months now. This appointment was originally scheduled for October. However, due to surgery, we had to reschedule. Today was the first available appointment. That taught us pretty quickly not to cancel out on a specialist! Of course, there wasn't much we could do about it at the time. I'm anxious to go over Peyton's history with him as the only time he saw her was in the hospital after she was born. She'll probably have some more testing done. She's been tested for hundreds of genetic disorders already and so far nothing has come up. I just wish we could put a name on what this is. Most of her doctors feel that her constellation of problems has to be some sort to syndrome. Unfortunately, she could be the first person with it! We may never know. Anyway, hopefully this brilliant doctor will take a look at the doctors notes I'm bringing and it will trigger something for him and we could be on to another lead. Will keep you posted!!